International Fragile X Organisations

Bulgaria FlagBULGARIA – Bulgaria: Association of Parents of Children with Cerebral Palsy (Also includes support for fragile X families)

Czech FlagCZECH REPUBLIC – Fragilni X

China FlagCHINA – Parent Contact: Fanny Fan
Phone: 86 13694269232 Email:
Denmark FlagESTONIA – Institute of Molecular and Cell BiologyDepartment of PediatricsUniversity of Tartu
Helen Puusepp, MD
Tel: +372-7375034 E-mail:
guatemala flagGUATEMALA – Asociación Guatemalteca del Sindrome X-Fragil (en formación) on Facebook
K.m. 16.5 carretera a El Salvador, L5, MzB Sector III.
Terravista. Fraijanes, Guatemala. Tel. 502 5219 8949

Israel FlagISRAEL – Fragile X Society – Israel

Rachel and Ofer David (Parent Contacts)


New Zealand FlagNEW ZEALAND – Fragile X Trust (NZ)

ng_nigeria NIGERIA and WEST AFRICA – Parent Contacts: Pastor Mr. and Mrs. Osakpolor AiyanyorE-Mail:

romaniaROMANIA – Parent Contact E-mail:

Saudi Arabia Flag SAUDI ARABIA – Osama Al Swailem, MD

Tel: 966 1 442 4680 Fax: 966 1 442 7811


Taiwan FlagTAIWAN – Taiwan Fragile X Association

Phone: 886-2-27680802. Email:

United Arab flag UNITED ARAB EMIRATESKhaled Amiri, Ph.D.

Tel (9713)7614064 Fax (9713)7614045

Mobile (97150)6248523E-Mail:

United Kingdom FlagUNITED KINGDOM – The Fragile X Society

usUNITED STATES OF AMERICA – National Fragile X Foundation

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